Wednesday, June 22, 2011

An Up and Down Kind of Day...

Luke was a little shy for the camera today, but even the back of his head is so darn cute...


Today was not one of Luke's best so far. It actually started around 2:30AM last night, but not due to any of his medical issues. We were all woken up by Jonathin's cell phone, with a call from Riley's. I was not able to answer it in time, so I had to call back and go through all the operators to get to our nurse. Here we were thinking the worse, that something was really wrong. OH NO, we were just butt dialed by the nurse. I could be upset, but on the other hand I was more relieved. Nothing was wrong and he was sleeping nicely. Whew! When we then arrived at the hospital in the morning we were met with the news that his blood pressure was acting up. The doctors believe that his ductus arteriosis had opened back up again, due to the blood pressure issue. What the PDA is, is a hole in his heart that is open while he is a fetus for oxygen from the placenta and should close when a full term baby is born. However, 50% of micro preemies like Luke have the risk for the PDA to stay open. Luke has already been treated for it once during the first three days of his life at Memorial, and it was thought the hole either closed or was just slightly opened. However, this can go on for a very long time. We are still within the window for Indocin, a medication, to be given again. They will just be watching closely.  
In other news, the results came back on his head ultrasound from yesterday. As of right now there is are no bleeds in the brain....thank goodness. That does not mean that later on he might have some cognitive impairment, or might be playing catch up a bit. However his anatomy looks good according to the nurse practitioner. So that brought a smile to my face. The rest of the day, Luke just didn't want to be messed with, and Jo his nurse knew that. His blood pressure was a little better after they started him on dopamine, but it still wasn't the greatest. Then we had the blood transfusion. Once that started his blood pressure looked a lot better, that was a plus. Then when Dad was in with Luke he noticed that his right foot where the line for his blood transfusion was going in was puffy and looked purple. He called Jo over and instantly she was upset. She had been monitoring it, like you need to be with blood and everything looked good. However after 2 cc's of blood the line that was placed at Memorial on Sunday apparently blew. This then allowed the blood to profuse into the tissues of his foot and ankle. So he has little purple bruised foot. I understand that can happen and did not hold that against Jo, Luke had worked her for all her money throughout today. However, she took it hard and came out and found us in the waiting room. She had been crying and felt terrible and wanted to apologize. It wasn't her fault. So now my little superman has a bummed up little foot. Hopefully that clears up quickly. 
On another note, tonight is Jonathin's first night back to work in almost 2 weeks. I hope it goes well, at least he can call and check on Luke all night. I gave Melody the nurse and heads up that she might get a few calls. I know Friday can't come soon enough for Jonathin. That pretty much sums up our day, or Luke's 10th day. Thank you all again for the support and the well wishes. All the messages, calls, emails really mean a lot and help us get through the days.

Jordan

Our address:
Jordan & Jonathin Molnar Rm# 33
c/o the Ronald McDonald House
435 Limestone
Indianapolis, IN 46202

4 comments:

  1. Thanks for the update. Hope his little foot heals quickly :)

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  2. Hello! I work with Jonathin's dad, and just wanted to let you know that we are praying for your little miracle ~ and for your family! Best wishes!
    Amber Lawmaster and family

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  3. Thanks for the update. My fingers and toes are crossed for Luke :)

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  4. Hey, I think I know the nurse that butt dialed you! ;)

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