First lets touch base on how big of an Indiana Hoosier Luke is...A couple weeks ago Luke apparently wrote a little note to the IU Men's Basketball team with the help of his Gammy. He told them how he has been cheering for them since he was 1 pound. He had worn cream and crimson on the flight to Riley at a week old. Luke even sent pictures of him cheering on the team the past 2 seasons. He asked if there was any way possible for a few autographs to go with his striped pants. Less than 2 weeks later Luke received a package! The team out did themselves. Luke's pants are now covered by the team. Cody and Victor even signed his pictures to put in his scrapbook. Luke has a couple jealous friends over his pants. They're now going in a shadowbox for Luke to keep in his room.
The weather has been up and down lately. Luke has been fighting allergies so we haven't been able to be outside a lot lately. When we are able to go out Luke takes full advantage of his swing set. Him and his dad had a nice moment the other night on the swing set after work.
If you haven't heard through the grapevine yet, Luke has begun to roll. And by rolling, I mean non-stop moving and getting stuck. About a month ago, Luke started rolling. Nothing really quick, but moving around the room. Now we can't keep him down. I can't put him down before he is on the move. Even changing his diaper is challenging. More than once I've had a naked baby rolling through the living room. It is time to start baby proofing the house. As the picture shows, he seems to get stuck in uncomfortable places like closet doors. He was still happy though.
This past weekend was our first March of Dimes March for Babies walk. We didn't take part last year because Luke was still in RSV isolation. We made a goal this year of $500, and I'm proud to say we doubled our goal and had over a thousand dollars worth of donations. We had great weather for the walk. It was a little chilly at the beginning, but the 3 mile walk warmed us up nicely. I can't thank everyone enough that walked with us and donated in Luke's name. Hopefully we can double walkers and donations again next year for Superman's Squad.
For Mother's Day Luke surprised me with a new talent...he sat in a high chair for the first time at a restaurant. Usually we have to take an umbrella stroller in and he sits in that the entire time. Sometimes it can be challenging to explain to hostesses that he can't sit up on his own. We weren't given an option on Sunday. The restaurant was so busy there wasn't room for the stroller. We did have to put padding all around him, but he did really well. He started to get fatigued after a little while, however he made it through our entire meal. It was a great surprise. He felt so grown up he thought he could have a drink on his dad.
Yesterday we packed up Luke and made a trip to Riley. It was the appointment I have been waiting for...Developmental Peds. We were there 4 months ago, and that's where the Periventricular Leukomalasia diagnosis came up. We were also told that if Luke still wasn't sitting at this time we could look into a MRI. There was no turning back, I want the MRI. I am tired of guessing about the extent of his brain problems. I want to know what exactly were dealing with. The MRI is scheduled for June 3rd. Luke will be sedated for the procedure, so he can relax. After this, we will be sent to a Neurologist for a consultation. I know therapy is that best treatment, but I need to know what we are going into. We also had x-rays taken of Luke's hips. This is to make sure there isn't holding him back for walking. Apparently breech birth can affect his hips even at 1 pound. Those came back perfectly normal. We also had to have the conversation about Luke's weight. He eats and we don't gain weight. We are going to try a new formula and a new schedule. Luke now has snack times. We are also going to work on getting his digestive system working regularly. We have a few new ideas and medications to try. It seems like were back to trial and error. Hopefully we can get more answers as we move forward.
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